This makes research easier...but it also decreases data quality and prevents direct translation of findings into clinical care.
This is a major problem
for the era of precision medicine.
you have no way to learn what happens, regardless of the potential medical, personal or monetary value.
Should that change once your name is removed?
"Blockchain and privacy preserving technology should inform new ethical guidelines for health data."
“There‘s really no good reason, morally speaking, why patients aren‘t the owners of their own samples and the derivatives thereof,” she says."
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